Happy Father’s Day to all you Dads out there! Fatherhood: When a good man goes dad! I got my husband the Logitech Harmony One remote for his gift from me and Lizzy gave him a beautiful letter with her foot prints on the bottom. His father and step-mother came and watched her for a few hours on Saturday so we got to actually be a couple for a bit! Very enjoyable. However one of our activities was outside and I spent a bit too long in the sun. The sun causes lupus to flare up rather bad. I went to bed rather early yesterday after a long hot bath and lots of medication. This morning I was still running very low on spoons (The Spoon Theory) but had things that needed to get done. So, like most mothers out there, I pushed forward.
Here was my to do list for the day:
Coupon clipping! Feed the babe Grocery Store Target and pharmacy run Feed the babe Wipe down kitchen and bathroom Mop
- Laundry (work in progress)
- Make dinner for my hubby for F-day
- Feed the babe and get all of us ready for bed
I figure I’m doing rather well. I’m still in the process of learning my new diagnosis. It seems I learn something new every day. I have a big doctor day this Tuesday that includes a trip to the Ophthalmologist (apparently blindness is an issue with my meds), my regular weekly trip to my rheumatologist, and a trip to my OBGYN. Not to have a major TMI moment but they are stopping my cycle for 6 months to a year due to my hemoglobin levels, if I drop 2 points lower I will need a blood transfusion and iron infusions for up to 6 weeks. Like I said, learning things every day. Everyone I know is being very supportive and trying their best to keep up with all of my doctor appointments and new developments.
The biggest development as of late has been the child bearing issue. Lupus patients usually are on some form of immunosuppressant but with that comes issues of having children. It can cause miscarriages and malformations. J and I are in the process of figuring out how long I can be on this without having that be an issue. As well as how long before trying again would I have to stop. I have already spoken to my OBGYN about my diagnosis and she has dealt with many lupus pregnancies and feels confident she could get me through another one. I would have to stop all my medications except for 2. I feel I can do it but it’s a long ways down the road. We want to ideally have Lizzy out of diapers before having another. But we are trying to be realistic with my disease that the younger I am the easier this may be. I will find out much more detail on Tuesday with my march of the doctors.
Emotionally, I am handling this all pretty well. I have my moments of waning to shout “WHY?!” at the top of my lungs and wishing it was all just a joke. I pray and talk to those close to me and trudge on. This is a marathon, not a race after all.